CMS BlueButton on FHIR at Cinderblocks3
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The document discusses plans to improve the CMS Blue Button program by developing a new Blue Button on FHIR API. This API would allow Medicare beneficiaries to access their claims data through a standardized FHIR format and enable them to securely share their data with apps and services of their choice. The goals are to put patients in control of their data, support interoperability, and directly aid key White House initiatives around precision medicine and cancer research. The API would use OAuth for authorization and give beneficiaries ease of access to their structured health information.
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CMS BlueButton on FHIR at Cinderblocks3
- 1. CMS Blue Button® on FHIR: Empowering Patients Mark Scrimshire CMS Blue Button Innovator, Office of Enterprise Data and Analytics Carly Medosch CMS Blue Button Program Analyst, Office of Enterprise Data and Analytics May 2016 Cinderblocks3
- 2. ●CMS Blue Button Innovator ●Health Data and Cloud Technologist ●Co-Founder & CTO – Medyear ●Chief Instigator – HealthCa.mp ●Blogger – blog.ekivemark.com ●Twitter – @ekivemark Introductions: Mark 2
- 3. Disclaimer The views expressed in this presentation are my own and should not be construed as an official position of the US Department of Health and Human Services or The Centers for Medicare & Medicaid Services. 3
- 4. ●CMS/OEDA Blue Button Program Analyst ●Project Management Professional (PMP) ●Program and Project Manager (FAC-P/PM) ●Contracting Officer’s Representative (FAC-COR) ●Chronic illness patient/advocate Introductions: Carly 4
- 5. A Brief History of Blue Button 5 Blue Button Unleashes Personal Data Total Users VA, CMS, DoD DoD CMS VA
- 6. But people don’t want their data for it’s own sake… 6
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- 8. Blue Button in Use 1.4MCMS users 20–30k Downloads/Month Private sector applications already ingest, optimize, and visualize data from Blue Button text files • Hospital • Physician • Prescription drugs Federally Inspired Blue Button Community • VA • DoD (TRICARE) • CMS 2xtext downloads Beneficiaries can download up to 3 years of claims data 8
- 9. ● Health information challenging to use in current PDF or plain text format ● Beneficiary has to return to MyMedicare.gov to get at least 6 months of data each time new information is available ● Apps like iBlueButton have entered the market to automate this process by screen scraping and borrowing beneficiary userids and passwords weakening security ● Health care industry has moved to structured data formats (BlueButton+ / CCDA) ● Enhanced Blue Button service can be a powerful tool to support the drive to improve quality of care ● Interoperability is finally taking hold in health care Why Should Blue Button Change? 9
- 10. Blue Button supports several White House initiatives: ● The President’s Precision Medicine Initiative ● The President’s Cancer Moonshot Task Force Why Should Blue Button Change? “that ensures consumers have access to their own health data—and to the applications and services that can safely and accurately analyze it” 10 “Enhanced Data Sharing: Data sharing can break down barriers between institutions, including those in the public and private sectors, to enable maximum knowledge gained and patients helped. The cancer initiative will encourage data sharing and support the development of new tools to leverage knowledge about genomic abnormalities, as well as the response to treatment and long-term outcomes.” Sources: https://www.whitehouse.gov/the-press-office/2015/01/30/fact-sheet-president-obama-s-precision-medicine-initiative https://www.whitehouse.gov/the-press-office/2016/02/01/fact-sheet-investing-national-cancer-moonshot
- 11. How Could We Improve Blue Button? 11
- 12. Blue Button Vision “Build a developer-friendly, standards-based data API that enables beneficiaries to connect their data to the applications, services and research programs they trust” 12
- 13. An Enhanced BlueButton has a Critical Role in Value and Quality-Based Health Personal Applications Personal Health Record Care CoordinationResearch 13 Putting Patients at the center
- 14. Why Blue Button on FHIR*? *Fast Health Interoperability Resources 14 “I control who I share my data with” “I download my data”
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- 16. Patients take ownership of their data 16 • A Familiar and Proven Authorization Process • Used billions of times each day
- 17. Research team registers with CMS Research institution obtains unique access ID Research team embeds ID in data collection app Research team recruits Medicare user Medicare user uses data collection app Blue Button on FHIR API requires Medicare user to authenticate Medicare user gives app data access permission via API Blue Button on FHIR API issues user access key to data collection app Data collection app uses ID and key to automate data collection for user Behind the Scenes: Consumer Consent and Data Donation 1 2 3 4 5 6 7 8 9 17
- 18. Blue Button on FHIR will create a robust data API service that enables beneficiaries to connect their health data with the applications and services they trust. ● For beneficiaries More easily using their health data for better health Structuring Blue Button data will unleash innovation International standard improves interoperability ● Directly supporting key administration initiatives Supports several White House initiatives Reduces agency FOIA requests Supports PCOR investment objectives Enhanced Blue Button Outcomes 18
- 19. ● Blue Button on FHIR Front-end OAuth Server/Client: https://github.com/TransparentHealth/hhs_oauth_server https://github.com/TransparentHealth/hhs_oauth_client ● POET https://github.com/HHSIDEALab/BlueButtonFHIR_API https://github.com/HHSIDEALab/poet ● HL7 FHIR http://www.hl7.org/implement/standards/fhir/http.html ● HL7 WIKI http://hl7-fhir.github.io/index.html ● HAPI Server: https://github.com/jamesagnew/hapi-fhir Follow Our Progress, Join Us, and Contribute 19
- 20. ● Mark Scrimshire Blue Button Innovator Mark.Scrimshire@cms.hhs.gov ● Carly Medosch Outreach Carly.Medosch@cms.hhs.gov Contact Info 20